Strengthening Eye and Tissue Transplant Registry

The directive from the Centre, mandating states to ensure that eye banks and hospitals register tissue and cornea transplants with the National Organ and Tissue Transplant Organisation (NOTTO), marks a pivotal development in the healthcare system. This initiative, aimed at integrating corneal and tissue transplants into a centralised national registry, can streamline transplantation processes, increase transparency, and significantly boost access to life-altering medical procedures for thousands of patients. The fact is that despite significant advancements in eye care and transplantation technology, India faces a stark mismatch between the demand for corneal transplants and the available supply. Millions suffer from corneal blindness in the country, and many of these cases are reversible through timely transplantation. Yet, the gap persists due to a lack of coordinated efforts in managing corneal donations and transplants. By linking eye banks and hospitals with NOTTO, the Government has taken an essential step toward bridging this gap.
One of the most critical benefits of this directive is creating a transparent, centralised platform where data on patients awaiting transplants, the availability of donated tissues, and the status of ongoing transplants will be accessible. This move mirrors the existing system for organ transplants, such as liver and kidney, which has demonstrated success in improving efficiency and reducing waiting times. Currently, the fragmented nature of data management in eye banks hinders their ability to match donors with recipients effectively. This inefficiency often results in the wastage of precious corneas. A centralised database will not only ensure better utilisation of available resources but also foster trust among patients and their families, encouraging more donations.
The directive’s emphasis on performance evaluation for eye banks is another commendable aspect. Under the Transplantation of Human Organs and Tissues Act (THOTA), 1994, and its rules, eye banks are expected to collect a minimum of 500 corneas over five years. However, many non-performing eye banks have been allowed to retain their registrations despite failing to meet this benchmark. The Centre’s instruction to issue warnings to underperforming eye banks and, if necessary, deny their renewal underscores the Government’s intent to enforce accountability. This is a welcome move, ensuring that only those institutions genuinely committed to the cause of eye donation and transplantation remain operational. Additionally, the directive’s provision for eye banks to take responsibility for maintaining standards at associated cornea retrieval centres will enhance the overall quality of services provided.
While the directive is a step in the right direction, its effective implementation will require addressing several challenges. Investments in digital tools, personnel training, and regular audits to ensure compliance are key to success. Simultaneously, public awareness about the importance of eye donation needs to be enhanced. Despite cultural taboos and misconceptions surrounding organ donation, successful campaigns in India have shown that attitudes can be changed through consistent efforts. The Central and State Governments, along with NGOs, must work together to launch initiatives that encourage eye donations, particularly in rural and underserved areas. As the nodal agency, NOTTO’s role will be central to the success of this initiative. Regular monitoring and evaluation of the registry’s performance, along with the dissemination of best practices, will ensure its long-term sustainability.
The Centre’s directive is to recognise the need for systemic reforms in organ and tissue transplantation. This initiative is not just about numbers-it is about restoring vision, dignity, and quality of life to millions. Each cornea transplanted represents a life transformed, a family uplifted, and a community strengthened. The collective efforts of the Government, healthcare institutions and society at large will be instrumental in ensuring that the promise of this directive is fully realised. Through consistent monitoring, public engagement and technological advancements, India can set an example for the world in addressing corneal blindness. Timing is crucial in transplants. With a clear vision and committed action, the dream of light and sight for all can become a reality.