NEW DELHI, Aug 27: Concerned over the ‘delay’ in the implementation of a national policy for treatment of rare diseases, patient advocacy groups have appealed to the Union Health Ministry to come up with an immediate interim arrangement to support treatment of patients diagnosed with such ailments. Organization for Rare Disease India (ORDI) and Lysosomal Storage Disorder Support Society (LSDSS) have written to Union Health minister Harsh Vardhan asking him to provide an interim assistance till the National Policy Treatment … Continue reading Patient groups plead for interim assistance for patients with rare diseases